Jennifer Edwards Patient Liaison
As both a woman living with pseudoachondroplasia and the mother of a daughter with dwarfism, Jennifer brings personal insight and empathy to her role as Patient Liaison. With a long history of advocacy and deep roots in the dwarfism community, she’s passionate about supporting families, solving problems, and connecting people with the resources they need.
Her background spans a range of experiences: from performing at Radio City Music Hall to working in sales, homeschooling her daughter, and organizing impactful events and conferences. A creative at heart, she enjoys graphic design, marketing, and building strong, inclusive communities. She also has a love for travel, good food, and holistic remedies that promote wellness.
With a lifelong commitment to advocacy and problem-solving, Jennifer is excited to step into her new role and looks forward to getting to know the patients and families navigating their journeys. She’s here to help every step of the way, reach out with any and all questions.
